It showed a small (1.5cm) growth on my left pelvis. It could be scar tissue from my surgery in Feb'24 or it could be cancer spread.
To determine what it is, I'm now being scheduled for a PET scan (PET uses sugar to detect cancer).
If the PET comes back negative - then I guess we'll figure out what it is and what to do about it. But if the PET comes back positive, there are some options.
The pathology from my surgery is being sent to the lab to see if it will respond to a FGFR immunotherapy. If it won't, then we'll consult with radiation oncologists to see if the growth can be treated with high-dose radiation (it's close to the bowel, and they don't want to radiate the bowel). If neither of those are options, then there's some other immuno/chemotherapy to try. And then there's some research studies - and being relatively young and healthy I should be eligible.
Net-net, all is not lost. There are options. I feel good and am in pretty good shape.
Bring it on.
Update: 4/17/25 - spoke with Dr. Eigl about the trial (link above) and he's starting the ball rolling with testing of my bladder sample (plus additional blood testing) to see if I have the FGFR3 mutation. If I don't, there are some other newer therapies to try.